Requires certain health care providers to notify primary care physicians of newborns and infants about specific screening results related to sickle cell hemoglobin variants and to submit these results to the DOH for a specified purpose. Mandates that these physicians provide relevant information to parents and guardians. Requires the DOH to establish and maintain a sickle cell registry, allowing parents and guardians to request the removal of their children from the registry. Instructs AHCA to review medications, treatments, and services for sickle cell disease for Medicaid recipients, develop a written report, post it on its website, and submit a copy to the Governor, Legislature, and certain entities.
The 2023-24 General Appropriations Act (GAA) allows AHCA to use the unexpended $250,000 from the 2022-23 GAA for the Sickle Cell Disease Medicaid Study. The bill mandates biannual reports, costing $1.25 million over ten years if contracted out. Additionally, the bill allocates $1,060,804 in recurring funds, $21,355 in non-recurring funds, and five full-time positions to DOH to implement the Sickle Cell Disease registry.
